#mecfs

'Nobody knows what to do': How Long COVID left Physics Girl searching for answers Article https://www.kpbs.org/news/arts-culture/2026/10/21/nobody-knows-what-to-do-how-long-covid-left-physics-girl-searching-for-answers Podcast https://www.kpbs.org/podcasts/the-finest/physics-girl-spent-her-life-explaining-science-then-science-couldnt-explain-her-illness Screenshot from latest Science for ME weekly update #LongCovid #MEcfs #PwME #CFS@mecfs@fedigroups.social @longcovid@fedigroups.social

"What it’s like to be masking in 2026" "In which I answer the burning question everyone is asking – 'why are you still masking in 2026'?" https://nannyogg63.substack.com/p/what-its-like-to-be-masking-in-2026 She has ME/CFS and asthma herself but it's a general article #masking #MaskUp #Covidisairborne #CovidIsNotOver @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #PwME #CFS @NoVID@chirp.social #novid #chronicillness

It's hard for healthy people to imagine what this is like...I spent about 2 years almost 100% bedbound and it is hell. Showered about once every 10 days because that's all that my energy budget allowed. Some people in this severely ill state experience partial spontaneous recovery but some certainly do not. Headline: Former Olympic sprinter in bed 22 hours a day with ME/CFS. #MEcfs #disability

Low Vasopressin in Myalgic Encephalomyelitise/Chronic Fatigue Syndrome Vasopressin is also known as antidiuretic hormone https://www.endocrinepractice.org/article/S1530-891X(25)01349-7/fulltext Screenshot from AMMES October 2026 newsletter #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

Health is Political by Brittani James “Long COVID Changed Everything” https://www.blog.brittanijamesmd.com/p/long-covid-changed-everything Description from Science for ME @s4me@universeodon.com update: Good blog post by Family Medicine physician Dr. Brittani James on what illnesses such as #LongCovid & ME reveal about medicine's limits. #pwme #mecfs @mecfs@fedigroups.social @longcovid@fedigroups.social

ME/CFS explained by ducks! A funny presentation of serious subject matter in less than one minute. Please watch / boost even if you don't have ME/CFS. Thank you! ❤️ From diploma.duck on Instagram: https://www.instagram.com/p/DeKkY5-xGkv Transcript in alt text, let me know if you find errors or important omissions - I tried to include all important details. @mecfs@fedigroups.social#MEcfs #PwME #ChronicIllness #AltText

I was one of a number of patient scientists and advocates who was interviewed for this sympathetic, open access paper "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis" https://www.sciencedirect.com/science/article/pii/S003936812600110X?via%3Dihub #MEcfs #PwME #epatient #epatients #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

Living a rock ‘n’ roll life: doing laps of the local green air (300 metres) to check battery length of my electric wheelchair! 😜 Didn’t get a great angle for this photo when I was taking one of many breaks lying on a bench. #MEcfs #PwME #MyalgicEncephalomyelitis #SpoonieLife #ChronicLife @mecfs@fedigroups.social

Let’s hope this proposed ‘unifying theory’ of chronic fatigue leads to new avenues for diagnosis and treatment. 🙏 TL;DR: Researchers at the University of East Anglia and Oxford BioDynamics, found that long Covid, ME/CFS, PTSD, rheumatoid arthritis, and multiple sclerosis may affect overlapping biological networks involved in immune function, metabolism, cellular energy, and stress responses. The study used existing genetic data and 3D genome analysis rather than collecting new patient samples. This shared “unifying theory” could lead to common diagnostic blood tests and therapies that target the underlying fatigue pathways across all these conditions. The findings could eventually support better blood tests and treatments, but the proposed biological connections—including the potential role of genes such as LAG3, still need to be validated through further research. This is just the very beginning, but it is the beginning. https://www.sciencedaily.com/releases/2026/09/260929053543.htm #ChronicFatigue #MECFS #LongCovid #PTSD #AutoimmuneDiseases #MedicalResearch #HealthInnovation #ScienceBreakthrough #MedicalBreakthrough #UnifyingTheory #BiologicalResearch #ImmuneDysfunction #Metabolism #PatientAdvocacy #MedicalScience #HealthInnovation #CellularEnergy #EnergyProduction #ResearchMatters #ME/CFS #AutoimmuneResearch #Mitochondria #ImmuneHealth #PrecisionMedicine #NewTherapies #ScienceBreakthrough

Many Embarrassing Confusing & Frightening Symptoms #MEcfs #PwME

My Employment Cut F*cking Short #MEcfs #PwME

[Medical Education Failures Curse Sufferers] Oops, I got the letters in the wrong order due to cognitive issues! How about: Medical Education Completely Failed. Sorry! #MEcfs #PwME

Missing Everything, Completely Frustrated, Sad #MEcfs #PwME

Multiple Exposures to COVID = Freakish Symptoms #MEcfs #PwME

Mandating Exercise? Completely Fricking Senseless! This one is my little rant against doctors who suggest GET (graded exercise therapy). GET does not work and usually makes folks worse. This point is mentioned in this article if you want to read more: https://www.theguardian.com/commentisfree/2026/sep/24/abandoned-dismissed-and-gaslighted-me-sufferers-betrayed Archive version for those who avoid The Guardian: https://archive.is/R7fnL (thanks to @Rhube@wandering.shop ) #MEcfs #PwME

Medical Excuses Continue - Funding Scarce! "ME/CFS is the most under-funded condition, receiving <1% of its YLD proportionate funding" source = https://www.nature.com/articles/s43856-026-01516-7 #MEcfs #PwME

Mental Exhaustion / Can't Find Solace #MEcfs #PwME