#myalgicencephalomyelitis

Low Vasopressin in Myalgic Encephalomyelitise/Chronic Fatigue Syndrome Vasopressin is also known as antidiuretic hormone https://www.endocrinepractice.org/article/S1530-891X(25)01349-7/fulltext Screenshot from AMMES October 2026 newsletter #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

I was one of a number of patient scientists and advocates who was interviewed for this sympathetic, open access paper "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis" https://www.sciencedirect.com/science/article/pii/S003936812600110X?via%3Dihub #MEcfs #PwME #epatient #epatients #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

Living a rock ‘n’ roll life: doing laps of the local green air (300 metres) to check battery length of my electric wheelchair! 😜 Didn’t get a great angle for this photo when I was taking one of many breaks lying on a bench. #MEcfs #PwME #MyalgicEncephalomyelitis #SpoonieLife #ChronicLife @mecfs@fedigroups.social

“The Relentless Work of Being Sick” “A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.” https://www.motherjones.com/media/2026/09/rogers-sick-work-duke-press-qa-interview-chronic-illness/ #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs@fedigroups.social #spoonie

2/ Impact of PEM in ME/CFS #PEM #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid@mecfs@fedigroups.social

"Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences" https://www.theaustralian.com.au/health/medical/glandular-fevers-not-just-the-kissing-disease-as-kaylee-mckeown-found-out/news-story/c97eaf0b87503ffc9db4a4abe0aeee6d?amp Archive https://archive.is/4Tf0p *aka Mono #MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

Living with #MECFS All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness. From Lu Baker Art https://instagram.com/lubakerart (repeat) #CFS #PwME #ChronicFatigueSyndrome @mecfs@fedigroups.social